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What is Patient & Public Involvement (PPI) at Family Carers Ireland?
Family Carers Ireland is committed to putting carers at the very heart of what we do. In keeping with this commitment, we are working to embed Patient and Public Involvement (PPI) in our research processes. There are many different ways family carers can interact with research (1):
Why is PPI important?
PPI is becoming increasingly common in research. It can provide a real and substantial benefit to all stakeholders. While not without its challenges, PPI can:
Family carers report feeling fulfilled and gaining a sense of worth from taking part in PPI, well as feeling they contributed to research by providing a lay perspective (i.e. practical knowledge about being a family carers (3). Given this, PPI can be a valuable tool in the research process for both carers and researchers. Family Carers Ireland aims to expand its PPI work in the coming years.
Get involved in PPI
To ensure that family carers’ unique insights are included in research projects from the earliest stages, Family Carers Ireland have set up ‘Family Carer Public & Patient Involvement Panel’ – a Public and Patient Involvement (PPI) network of family carers who advise and work with researchers on research projects or carrying out research that involve family carers. In addition to being involved in various research projects across Ireland, members of the panel come together 3-4 times per year for capacity building workshops.
If you are a researcher and would like to engage with members of the Family Carers Research Advisory Network, please complete this form and return it to email@example.com.
If you are a family carer interested in becoming a carer representative please email firstname.lastname@example.org for further information.